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Dementia & Other Neurological Disorders Or Conditions

Elsa
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 Elsa
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(@elsa)
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Joined: 20 years ago

I know so many people suffering from dementia... and so many other who are their (family) caregivers.  I know other who work with these patients, but many are undiagnosed.  

Others are misdiagnosed! Really, there are nowhere near enough neurologists to go around.  The diagnostic process is long and often "inconclusive". If you are around this at all, it's easy to see why.

Medications for other conditions can produce dementia-like symptoms. You might recall my friend, Mary, who I met when she was dying of cancer.  She was inordinately bright and cheery but as she neared the end, she's lash out at her caregiver (but not me).  This was very hard to watch. I'd have to say she was "abusive" to her assigned (paid) caregiver. What can you do?

Then you have your various types of dementia but also numerous other neurological problems that have some other basis. Chemical exposure for example. 

I just wonder who is dealing with this at this point in time. Everyone?

I wish that was a joke!

So what do you know about this... "memory problems" or what have you? 

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 Kim
(@kim)
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Joined: 5 years ago

I'm not an expert, but one thing I learned when my baby boy was suffering from seizures is that there can be aluminum in the brain causing these symptoms (seizures, dementia, Alzheimer's, other neurological conditions). Some people have found relief by drinking silica-rich water, as it can help protect against aluminum absorption and improve its secretion. I won't say any things that might trigger attacks on this site, but I would recommend doing some online searches as to the sources of this toxicity.

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(@optimistic_cynic)
Joined: 3 years ago

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@kim I second you on this 100% Alzheimer’s and autism patients have high levels of aluminum in their brains. 

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(@research101)
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Joined: 3 years ago

I was reading a website with various articles, they talked about aluminum also in all, any vac***** even from years ago, and how this causes issues with the brain immune system, I will see if I can find the site again and post. Alot more to it but it makes sense.

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(@Anonymous 7650)
Joined: 3 years ago

I’m one, as you know ? caring for my Mum right now).

We are living much much longer, and just like mental health, recognition and diagnosis increasing over time. Not an exact science yet, of course. And people with dementia can live a long long time.

I know of many from older generations who had it, many surviving on their own - having to. And plenty who don’t have it, many more like this. 

Seeing dementia as v different from Alzheimer’s - I see a wide misperception/confusion that they are one and the same.

Hard on the person with dementia, hard on the carer. But would like to add that my Mum is well taken care of, knows this (occasionally ?), and tells me most days just how happy she is. 

 

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Elsa
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 Elsa
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Posted by: @plutopussycat

But would like to add that my Mum is well taken care of, knows this (occasionally ?), and tells me most days just how happy she is. 

This is a good point.  Some caregivers see their parents go from bitchy and awful to pleasant. Others have the opposite experience.

It's also common people who would never swear, start swearing and say all kinds of things.  I always refer people to Teepa Snow (youtube) who clearly has a gift for teaching people how to care for someone suffering from one of the dementias.

It's unbelievably painful to take care of your loved one who has become angry and abusive. This is pretty common actually, though as the person gets worse (and the caregiver gains skills), it can go smoother.

I don't see anyone not being touched by this, eventually. I also don't think there are enough compassionate people to go 'round. This is already the case, of course. But I'm sure it will get worse and stay worse in the foreseeable future.

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(@Anonymous 7650)
Joined: 3 years ago

‘Some caregivers see their parents go from bitchy and awful to pleasant. Others have the opposite experience.’

So true. This is how she is now, and she may change. For example she did in fact ‘fire me’ for two months last year. And in 2017, didn't speak to me for a year. 

 

 

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