I didn't realize astro.com closed their forum. I was surprised. I didn't think about it much, until I started to try to find real people talking about my husband's stuff.
There's reddit and nothing more. Not only that, what can be found on reddit is very little, considering millions people have been contributing there for more than 20 years. Topic is common, but information, outside of the ai, google friendly, bulleted lists, that are cut and pastes, EVERYWHERE, are not.
I'm pretty sure I fathom what's going on but it doesn't seem to interest people. I am unable to fathom why it doesn't interest people. Perhaps it doesn't matter?
I'm just bringing this up again. I have used the internet for many years, as has everyone else. Is the internet destined to continue on it's downhill course?
Like you get on here to see what the "wizard of oz" says. That's it. Take it or leave it?
Perhaps search a subject and forum. Yes, info is hard to find.
I found this site with search terms heart failure forum.
@sue-ellen Thank you! I appreciate this, greatly. I also understand there is a fb group, precious heart or something like that. I read good things but it's for sufferers and I also never go on fb. I will note the name of the group if I run across it again. THANK YOU!
Back on this topic, the private board that helped me so much some years ago, is still there. If not, I would have no way to get support.
Also on the heart failure subs on reddit, there are TONS of people in their 20's and even their teens getting this dx. How else can you learn something like that?
Real people just have to stay connected, less we find ourselves suffering alone, cut off from most information, simply because it's either gone or hidden from you.
@jana Oh no! I'm sorry, that's not what I meant. I am saying there are a lot of young people dx with heart failure.
Could be the shot, but I think Monster drinks may be the culprit.
Get this... there is an old man who works at sam's club, where my neighbor works. He tall, good looking, very elegant and polite.
Come to find out, he started having heart racing... he drinks these Monster's and other energy drinks and he is drum roll* eighty five years old! He does not look it at all. But can you believe it? That stuff is horrible.
First it's sugary drinks / obesity = now add caffeine and you get heart failure at 23 years old.
Yes.
I think I got my threads mixed up. Monster drinks makes more sense. I wonder if the kids having anxiety attacks (my husband saw this alot in high schoolkids) might also be impacted by energy drinks.
@jana I can only be me... I grew up drinking water and nothing else. I feel all these drinks are horrible. I mean, they are HORRIBLE, and the picture on the can should give a person a hint.
I definitely think you are onto something about the energy drinks. Several years ago, I had a cardiac work up. My heart palpitations were from caffeine. I had to cut back on my tea drinking. Doctor said we tolerate caffeine less as we age.
My mother’s heart failure was from atrial valve calcifications. The valve didn’t close properly which allowed regurgitation.
One more thing we found while researching thyroid problems. Low thyroid levels will cause stiffening of blood vessels and the heart itself which can lead to heart failure.
I'm pretty sure I fathom what's going on but it doesn't seem to interest people. I am unable to fathom why it doesn't interest people. Perhaps it doesn't matter?
I think it just seems beyond our control? There have been various places on the internet where people used to converse and exchange, that just don't exist anymore. Like isn't that just the nature of the beast? Big tech makes it all possible, so they control the flow of information. What am I to do about it?
I'm sad to see forums die. I realize social media is probably what caused them to die, but I see FB dying too. I’m not using the newer platforms that are popular with younger generations, but for them they are part of their social life. Just like AIM and myspace were for me in the late 90s/early 2000s.
You've invested a lot in this forum to maintain your own standards for interacting and exchanging with all of us, and that's extremely cool. We all love you for it. Based on how much you've shared about what that involves, I'm not surprised how many other people just migrated to other platforms instead. It takes so much work to build it and keep it current!
It does seem pretty downhill to me. But kids these days probably see it differently.
@cocopeaches It does seem pretty downhill to me. But kids these days probably see it differently.
Agree! They have zero interest in it. None whatsoever. New generations like different things. Fb is dead. Instagram is still hot. Twitter is full of people shouting expletives at each other which is entertaining for about 5 minutes. Tiktok has 170 million Americans on it daily. They want to ban it in America. They may. But no one is going back to what we already have available. In fact, it makes them angry enough to want to boycott the others. Everyone knows that these sites have sold or had a breach of their information, so they aren't buying the reason.
My grands are teens. They are not going to converse on a forum, they are not telling anyone their business even with an alias. Which is smart! My grands no longer want their pictures on the internet. They decided that. Do not post them. They don't use Facebook or insta. They call this stuff... for old people. I respect the change.
I went to Facebook recently to catch up with family. I use it for family pictures exclusively. Nothing more. Only family and I am not talking to family about anything stressful or pressing there. If they try, I block them. I'm not going to do it.
If I have learned anything, reduced conversation on the internet is smart. Telling your business is a good way for it to get broadcasted all over God's green earth. I don't even want to have inbox conversations with anyone anymore. Say it to my face, or in this recorder. Lying comes too easy these days. Trust means nothing.
Pluto in Capricorn taught me some hard lessons. Lot of pain with that moving through my relationship house. I'm changed forever. I already didn't trust people as a part of who I am naturally... but now? ha
Now looking back, whoever thought it was a good idea to tell all your personal business to the world electronically was a mastermind at the time. But people have learned, lost jobs and marriages, family... they are done. Real done. And our kids have watched it and know it. They are not going to do it.
When they ban the last one, I am done with the internet. I will still use it as a utility for certain things, shopping will be one... I think people are just over using it socially in the ways they used to. They want BAM and to be done. Hit information... then move on.
Reddit for me is the forums I used to have years ago. Except for here, I don't post anything personal on forums. I can't recall the last time I did.
My kids have very little social media presence. The Saggie told me it's for her own protection. She said there are too many entitled creeps out there. Hey, I wouldn't want a social media presence either if I was young. All I have is a not often updated FB. I use Messenger to get a hold of my friends for a quick conversation. That's it. I don't want everything out there.